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Are you more inquisitive than a 5th grader?
So I am speaking about two or three times a month to local fifth grade classes. Newton has a program called Understanding Our Differences that focuses on exposing the kids to people with disabilities. It’s a lot of fun to talk to these kids. They have a lot of great questions after I talk to them, show them a video and take my leg off and let them pass it around the class. I’m going to start collecting the questions they ask me and post my best answers to them here. First the list of all questions as hyperlinks to answers below:
- How did they cut it off?
- What did they do with it afterwards?
- How do you balance? On a bike?
- Will you do anymore skiing or do you still ski? Where do you like to go skiing?
- Do you have any trouble going up and down stairs?
- Is there are place where you can buy only 1 shoe?
- Has anyone ever made fun of you or made you feel bad because you were missing a leg?
- Do you ever fall down?
- What is the scariest thing you have ever done?
- Is that a real foot on your prosthesis?
- Can you take your shoe off of the prosthesis?
- What place did you finish in the Pan Mass Challenge?
- What high school did you go to?
- Do you need to use a special bike to bicycle with only one leg?
- How many years have you had the prosthetic leg?
- Does it hurt when you put the prosthetic on or take it off?
- Do you feel nervous when you jump rope?
- Did it hurt when you first got the prosthetic?
- Is there a cover over your leg before you put the prosthetic on?
- Did the amputation of your leg hurt?
- How long after the amputation did it take for you to feel like you were living a “normal” life?
- How old were you when you learned to ski?
- If you could get back your leg or lung which would it be?
- What is your favorite sport and why?
- If you could add one more sport what would it be?
NEW QUESTIONS FROM ARROWHEAD ELEMENTARY:
-
How did they cut it off?
There is a saw involved. Bone is harder than the branch of a tree. But first they have to carefully cut all the skin, muscle, and blood vessels carefully and sew them up as they go so I didn’t bleed to death. In my case, they tried using a tourniquet—a very tight rubber band around the leg—to try to keep a lot of pressure on the blood vessels so they don’t bleed. Didn’t work in my case because as an otherwise healthy 16-year old boy, I had pretty strong leg muscles that resisted the tourniquet and didn’t let the blood vessels get squeezed. So I bled a lot more than they wanted me to. -
What did they do with it afterwards?
I’m not sure. But I’m pretty sure I don’t want to know. I assume it was considered “biological waste” unfortunately. No ceremony. -
How do you balance? On a bike?
Balance is one of those things that your brain sort of just does for you. It took a little time for my brain to “re-learn” what my body was like so it could balance again. On a bike is a little different story. Of course I am a lot heavier on the left side than the right. So I lean a bit with my upper body to compensate. I stopped thinking about that a long time ago. Also, once I am moving the large wheels of the bicycle act like gyroscopes—those toys you wind up and spin like a top but they have a heavy wheel that keeps the top from tipping at all—and it keeps the bike nice and vertical. When I stop I have to be pretty careful to lean to the left where I have a foot I can put down to rest on. Just once or twice the first year I was riding did I make a mistake and let myself fall to the right. -
Will you do anymore skiing or do you still ski? Where do you like to go skiing?
For sure. I plan to ski a lot this winter. Sunday River and Stowe here in the East and I have a week planned at Jackson Hole out west. Maybe more besides that. I have to work very hard to get my one leg ready for a season of skiing but my leg is strong and I think I can keep this up another 20 years if I don’t hurt my knee. -
Do you have any trouble going up and down stairs?
The answer has two parts. One for with my prosthesis on and one with it off. When it is on I have to go up two stairs at a time leading with my real leg. The prosthesis does nothing to help going up steps. Remember there is no motor in these legs to lift you up a step. So its two steps up with my left leg and then pull the artificial leg up those two steps over and over again. So its not really hard as long as my left leg is strong and its about as fast as a 2-legger goes up stairs. Then there is the rest of the time when I am not wearing my leg and am on crutches. This is something I have done for so many years that I am really fast and strong at it. Again going up I go two at a time. Going down same thing but crutches go first and leg comes down second. -
Is there are place where you can buy only 1 shoe?
Actually some very cool stores will do this. Nordstrum’s for example. And then there is the National Odd Shoe Exchange that I give a shoe or ski boot to when I buy a pair and they find people who need that single shoe. -
Has anyone ever made fun of you or made you feel bad because you were missing a leg?
Sort of. No one ever gets used to or comfortable at being stared at. I know you kids would not like it either. And still to this day I get stared at a lot like when I am at the pool getting ready to swim. Also in the locker room. Little kids do it the most. Once people are grown up they know better. Kids should learn that if they are curious I have never known someone who minded a direct question instead of being stared at. -
Do you ever fall down?
With the old type of prosthetic legs an amputee would fall on average once per week. Since I got this computerized knee six years ago I have not fallen once. If I stumble the knee notices and the computer turns on the brake and stops me from falling. I have turned that into a great way to dance. After all, rock and roll dancing sort of looks like you are stumbling around anyway doesn’t it? So I can dance with this cool new leg like nobodies business. -
What is the scariest thing you have ever done?
Barefoot water ski on one foot. -
Is that a real foot on your prosthesis?
No it’s not a real foot. It’s plastic wrapped around fancy springy steel. They make it the same size as my real foot so the shoe will fit correctly. The springy steel is so as I walk I get some push from the foot kind of like you get from your ankle. -
Can you take your shoe off of the prosthesis?
It’s very hard to take the shoe off while the leg is still on me. So one of the funny things is that in security at the airport I take off just one shoe. The TSA guy is usually pretty perplexed about that but eventually lets me go through the metal detector and then I have to have a close pat-down. -
What place did you finish in the Pan Mass Challenge?
It’s not a race. It’s actually the largest and oldest athletic fundraiser in the country. In just one weekend, 5,000 riders raise about $33 million for cancer research. Ok but having said that, I do like the fact that I get into camp at the end of each day with about half the total group faster than me but half behind me. That means I “beat” about 2,500 two-leggers and that feels pretty good. But, it’s not a race
-
What high school did you go to?
It was in the suburb Birmingham outside of Detroit and it was called Birmingham Groves. It was huge with 2,100 students in only 3 grades. -
Do you need to use a special bike to bicycle with only one leg?
Not really. It just has to be very strong because a normal bike is not built to have only one side do all the pulling and pushing. So mine is a custom-made titanium bike. Then they took off the crank and pedal on the right said (lightens it up and makes it very hard for you two-leggers to try to steal it). -
How many years have you had the prosthetic leg?
Let’s see, I got my first one in 1974 when I was 16 and since it is now 2011 that is 37 years. In that time I have probably had 10-12 legs. The latest one cost $50,000! -
Does it hurt when you put the prosthetic on or take it off?
No not at all. In fact it’s kind of a release to take it off and it’s kind of tight and since its plastic against skin my skin likes to breathe after its off. To get it on doesn’t hurt either. I have to make sure its nice and snug but as long as I do not walk too far or keep it on too long its ok. -
Do you feel nervous when you jump rope?
Not really. Whenever you work really hard at something and get good at it you develop confidence in that thing. Then when you have to do it in front of people you just get back into the grove of how it felt to do it the 1,000 you were just by yourself. -
Did it hurt when you first got the prosthetic?
Where the leg was cut hurt for a very long time so yes, the first prosthetic hurt just because my skin, muscles, bone and nerves were all very traumatized and not yet fully healed. -
Is there a cover over your leg before you put the prosthetic on?
These legs are all held on to the body using suction. The way mine works is that there is a cone-shaped piece of rubber I turn inside out and roll onto my stump. Out of the tip of this cone is a strong metal spike. Now I place this entire thing with the spike pointing down inside a hollowed out socket that is on the top of the leg. This was carefully fitted just to me to its a perfect fit once I am lined up. The spike goes through a hole in the end of the socket where there is a ratchet mechanism that will let the spike in but not let it slide back out. Then I am in tight and the rubber pressed against my skin will not slip and the whole 12 pounds or so is held on with suction. To take it off I hit a release button that releases the ratchet and now the spike, the rubber cone thing and my stump and me in it all come popping out of the leg. I unroll the rubber cone thing and presto, I am free and clear of the leg. -
Did the amputation of your leg hurt?
More than you can ever imagine. I hope you never have to feel anything like that. I did the best I can to describe that pain in my book so to get those details you need to buy the book -
How long after the amputation did it take for you to feel like you were living a “normal” life?
Don’t feel like I am there yet… Seriously, once something this significant happens to you there is no getting back to the old normal. But you still try to seek a new “normal” whatever that is. It’s kind of like you finding a “normal” as a 3rd grader but then 4th grade is different right? You are different, your friends are different so you all have to find a new “normal”. OK but given all that I would say that it was not until I got done with college in 1978 that things felt pretty good and stable for me. So that would have been at least 5 years. -
How old were you when you learned to ski?
5 and then I broke my leg when I was 6. That’s in the book too -
If you could get back your leg or lung which would it be?
I would have to say lung. But it’s complicated. Sure who wouldn’t like to have two legs? And I have expanded my remaining lungs with swimming and I am never out of breath. But associated with the loss of the lung were two extra very difficult things. First, suddenly it felt like every 3 years I was going to lose another major body part and that was incredibly scary. How many body parts can one give up before you give it all up? But second, was the even deeper psychological burden of death. People who are 19 don’t think about death nor should they. They are naturally endowed with an innate sense of immortality. But something like what I went through even was able to penetrate that natural shield. So I had to live (for a long time in fact) with the constant haunting feeling that I was not long for the world. I associate that with the loss of the lung so that was much worse than losing the leg 3 years earlier. -
What is your favorite sport and why?
Skiing for sure. Not that I get to do it very many days a year. Maybe 10 these days if I am lucky. I do way more days of swimming and biking. But skiing is special for two reasons. First, it was the first sport I was focused on tackling right after the amputation. It’s technically very hard so getting it right was a very high achievement for me as well. But the big second reason is how it makes me feel relative to my disability. I get people to make double-takes at me as I go by. That is the exception to the rule that I don’t like staring. If they are “staring” because my accomplishment is impressive, then ok, bring it on. I like speed too and in skiing I get that way more than any other sport. But it is back to the self-confidence/self-esteem thing that makes skiing my #1. When you do really well at something as hard as skiing and when it gets TABs (that’s Temporarily Able-Bodied) to have respect for you, that is huge in recovering and maintaining your self-confidence. I attribute my year as a ski bum where I finally conquered skiing to being the biggest step I ever took on the road back to well-being. -
If you could add one more sport what would it be?
I’d say rowing. I live in Boston and near the Charles River and rowing is really big here. It’s a great sport for the whole body and it’s easy to do it with more or less arms or legs depending on your situation. I have done it a bit but am not yet accomplished at it. Like any sport, it takes a lot of time and practice to really reach that level so I have a ways to go. I hope to do more of it this year if I can find time. One of the people we intend on filming for the new TV show is a world class rower so it would be nice if I was a bit further along in my rowing skill before I try to row with her.
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